Lymphedema Resource Guide
Non-Profit Organizations
www.lymphaticnetwork.org Lymphatic Education and Research Network (LE&RN)
www.lymphnet.org National Lymphedema Network (NLN)
Additional Online Resources
www.alfp.org American Lymphedema Framework Project
https://www.cancer.org/treatment/treatments-and-side-effects/physical-side-effects/lymphedema.html – American Cancer Society
www.cancer.gov/about-cancer/treatment/side-effects/lymphedema/lymphedema-pdq National Cancer Institute
www.lymphcareusa.com online resource for patients, families and caregivers
www.lymphaticnetwork.org/symposium-series LE&RN Online Symposium Series – extensive selection of lymphedema webinars
www.lymphaticnetwork.org/living-with-lymphedema/lymphedema Lymphedema FAQ’s
www.youtube.com/watch?v=o_lnoL4ssFk LE&RN Symposium Living with Lymphedema: One Nurse’s Journey as Patient and Advocate Catherine Holley, RN / MGH Nurse
www.livestrong.org/we-can-help/finishing-treatment/lymphedema LIVESTRONG
www.lbbc.org/ Living Beyond Breast Cancer
www.lymphnotes.com/ online resource for those having, or at risk of developing lymphedema; also for the family, friends, and therapists who care for these individuals
www.lighthouselymphedema.org/home/ the Lighthouse Lymphedema Network is an organization of individuals who are lymphedema patients, or who have an interest in lymphedema
Internet Blogs
www.lymphedemablog.com/ Joe Zuther, Lymphedema Specialist
www.lymphedemapeople.com/ a site for people with lymphedema, made by people with lymphedema
www.thelymphielife.com/ by Alexa Ercolano, a primary LE patient
http://staylymphiestrong.com/ by Vern Seneriz, a primary LE patient
http://stepup-speakout.org/ SU-SO – Together We Can Make the Difference in Lymphedema
Locate a Certified Lymphedema Therapist
https://vodderschool.com/ – Vodder School
Look4LE – Smartphone app
https://lymphaticnetwork.org/living-with-lymphedema/find-a-lymphedema-therapist/ – listing of facilities that have CLT’s, individual state directories
Massachusetts Lymphedema Support Network
MAChapter@lymphaticnetwork.org – The Massachusetts Chapter of Lymphatic Education and Research Network (LE&RN) is a supportive network for patients, caregivers, lymphedema clinicians and others throughout Massachusetts and surrounding areas.
On Facebook: Lymphatic Education & Research Network, Massachusetts Chapters
Social Media Support Groups / Networks
Official Lymphie Strong Inspiration Group (Facebook)
Lymphedema Positivity & Advocacy Network (Facebook)
The Lymphedema Running & Fitness Club (Facebook)
Lymphedema (Facebook)
Financial Assistance for Compression Garments
www.conniecares.org/ – Connie Cares is a non-profit organization helping lymphedema patients cover the cost of deductibles or other out of pocket expenses associated with their lymphedema